DisabilityWiki Project Bibliography
This bibliography compiles sources used throughout DisabilityWiki. It is organized by topic and includes international frameworks, disability-led organizations, government resources, academic sources, and community materials.
This is a living document. For guidance on adding sources, see How to Contribute.
International Frameworks and Human Rights
Section titled “International Frameworks and Human Rights”United Nations Convention on the Rights of Persons with Disabilities (CRPD)
Section titled “United Nations Convention on the Rights of Persons with Disabilities (CRPD)”Primary Sources
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United Nations. (2006). Convention on the Rights of Persons with Disabilities. New York: United Nations.
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United Nations. (2006). Optional Protocol to the Convention on the Rights of Persons with Disabilities. New York: United Nations.
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Committee on the Rights of Persons with Disabilities. General Comments. Geneva: OHCHR.
- Available at: https://www.ohchr.org/en/treaty-bodies/crpd
Secondary Sources
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Bantekas, I., Stein, M.A., & Anastasiou, D. (Eds.). (2018). The UN Convention on the Rights of Persons With Disabilities: A Commentary. Oxford: Oxford University Press.
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de Beco, G. (Ed.). (2013). Article 33 of the UN Convention on the Rights of Persons with Disabilities: National Structures for the Implementation and Monitoring of the Convention. Leiden: Martinus Nijhoff.
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de Beco, G., Quinlivan, S., & Lord, J.E. (Eds.). (2019). The Right to Inclusive Education in International Human Rights Law. Cambridge: Cambridge University Press.
Other International Instruments
Section titled “Other International Instruments”-
United Nations. (1948). Universal Declaration of Human Rights. New York: United Nations.
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United Nations. (1993). Standard Rules on the Equalization of Opportunities for Persons with Disabilities. Resolution 48/96. New York: United Nations.
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World Health Organization. (2001). International Classification of Functioning, Disability and Health (ICF). Geneva: WHO.
United States Legal Frameworks
Section titled “United States Legal Frameworks”Americans with Disabilities Act (ADA)
Section titled “Americans with Disabilities Act (ADA)”-
Americans with Disabilities Act of 1990, 42 U.S.C. § 12101 et seq.
- Full text (as amended): https://www.ada.gov/law-and-regs/ada/
- ADA National Network overview: https://adata.org/learn-about-ada
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ADA Amendments Act of 2008, Pub. L. 110-325.
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U.S. Department of Justice. ADA Regulations.
Rehabilitation Act
Section titled “Rehabilitation Act”- Rehabilitation Act of 1973, 29 U.S.C. § 701 et seq.
Education
Section titled “Education”-
Individuals with Disabilities Education Act (IDEA), 20 U.S.C. § 1400 et seq.
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Education for All Handicapped Children Act of 1975, Pub. L. 94-142.
Housing
Section titled “Housing”- Fair Housing Act of 1968, as amended, 42 U.S.C. § 3601 et seq.
Transportation
Section titled “Transportation”- Air Carrier Access Act of 1986, 49 U.S.C. § 41705.
International Country-Specific Legal Frameworks
Section titled “International Country-Specific Legal Frameworks”Canada
Section titled “Canada”- Canadian Human Rights Act, R.S.C. 1985, c. H-6.
- Accessible Canada Act, S.C. 2019, c. 10.
United Kingdom
Section titled “United Kingdom”- Equality Act 2010.
- Disability Discrimination Act 1995 (superseded by Equality Act 2010).
European Union
Section titled “European Union”- European Commission. (2021). Strategy for the Rights of Persons with Disabilities 2021-2030.
Australia
Section titled “Australia”- Disability Discrimination Act 1992.
Disability-Led Organizations
Section titled “Disability-Led Organizations”United States
Section titled “United States”- ADAPT. https://adapt.org
- Autistic Self Advocacy Network (ASAN). https://autisticadvocacy.org
- Center for Independent Living, Berkeley. https://www.centerforindependentliving.org
- Disability Rights Education and Defense Fund (DREDF). https://dredf.org
- National Council on Independent Living (NCIL). https://ncil.org
- Not Dead Yet. https://notdeadyet.org
- Self Advocates Becoming Empowered (SABE). https://www.sabeusa.org
- The Arc. https://thearc.org
International
Section titled “International”- Disabled Peoples’ International (DPI). https://www.disabledpeoplesinternational.org
- European Disability Forum. https://www.edf-feph.org
- Inclusion International. https://inclusion-international.org
- Independent Living Institute. https://www.independentliving.org
- World Blind Union. https://worldblindunion.org
- World Federation of the Deaf. https://wfdeaf.org
Disability History
Section titled “Disability History”-
Longmore, P.K. (2003). Why I Burned My Book and Other Essays on Disability. Philadelphia: Temple University Press.
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Longmore, P.K., & Umansky, L. (Eds.). (2001). The New Disability History: American Perspectives. New York: NYU Press.
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Nielsen, K.E. (2012). A Disability History of the United States. Boston: Beacon Press.
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Pelka, F. (2012). What We Have Done: An Oral History of the Disability Rights Movement. Amherst: University of Massachusetts Press.
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Shapiro, J.P. (1993). No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Times Books.
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Burch, S. (2021). Committed: Remembering Native Kinship in and beyond Institutions. Chapel Hill: University of North Carolina Press. (Winner, Disability History Association Outstanding Book Award, 2022.)
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Cohen, A. (2016). Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck. New York: Penguin Press.
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Gerber, D.A. (Ed.). (2012). Disabled Veterans in History (enlarged & rev. ed.). Ann Arbor: University of Michigan Press.
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Metzler, I. (2006). Disability in Medieval Europe: Thinking about Physical Impairment during the High Middle Ages, c.1100–c.1400. London: Routledge.
Key Events
Section titled “Key Events”-
National Park Service. “Disability History: The Disability Rights Movement.”
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Disability Rights California. “Section 504 Sit-In.”
- Patient Rights Advocacy and Disability History: https://www.disabilityrightsca.org
Disability Models and Theory
Section titled “Disability Models and Theory”Foundational Texts
Section titled “Foundational Texts”-
Oliver, M. (1990). The Politics of Disablement. London: Macmillan.
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Oliver, M. (1996). Understanding Disability: From Theory to Practice. London: Macmillan.
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Shakespeare, T. (2006). Disability Rights and Wrongs. London: Routledge.
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Shakespeare, T. (2014). Disability Rights and Wrongs Revisited (2nd ed.). London: Routledge.
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Union of the Physically Impaired Against Segregation (UPIAS). (1976). Fundamental Principles of Disability. London: UPIAS.
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Stone, D.A. (1984). The Disabled State. Philadelphia: Temple University Press. (The orienting text on disability as an administrative category states use to distribute aid.)
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Campbell, F.K. (2009). Contours of Ableism: The Production of Disability and Abledness. Basingstoke: Palgrave Macmillan.
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McRuer, R. (2006). Crip Theory: Cultural Signs of Queerness and Disability. New York: NYU Press.
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Kafer, A. (2013). Feminist, Queer, Crip. Bloomington: Indiana University Press.
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Mitchell, D.T., & Snyder, S.L. (2000). Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: University of Michigan Press. (Names “narrative prosthesis” — the essential lens for evaluating fictional portrayals of disability.)
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Garland-Thomson, R. (1997). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. New York: Columbia University Press.
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Linton, S. (1998). Claiming Disability: Knowledge and Identity. New York: NYU Press.
Disability Justice
Section titled “Disability Justice”-
Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.).
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Berne, P., Morales, A.L., Langstaff, D., & Sins Invalid. (2018). “Ten Principles of Disability Justice.” WSQ: Women’s Studies Quarterly, 46(1&2), 227-230.
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Piepzna-Samarasinha, L.L. (2018). Care Work: Dreaming Disability Justice. Vancouver: Arsenal Pulp Press.
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Russell, M. (2019). Capitalism and Disability: Selected Writings by Marta Russell (K. Rosenthal, Ed.). Chicago: Haymarket Books. (Political economy of disability; a Marxist critique of the limits of a civil-rights-only approach, including the ADA.)
Intersectionality and Disability
Section titled “Intersectionality and Disability”-
Annamma, S.A., Connor, D., & Ferri, B. (2013). “Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability.” Race Ethnicity and Education, 16(1), 1-31.
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Connor, D.J., Ferri, B.A., & Annamma, S.A. (Eds.). (2016). DisCrit: Disability Studies and Critical Race Theory in Education. New York: Teachers College Press.
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Erevelles, N. (2011). Disability and Difference in Global Contexts: Enabling a Transformative Body Politic. New York: Palgrave Macmillan.
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Schalk, S. (2018). Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction. Durham: Duke University Press.
Mad Studies and Psychiatric Disability
Section titled “Mad Studies and Psychiatric Disability”-
LeFrançois, B.A., Menzies, R., & Reaume, G. (Eds.). (2013). Mad Matters: A Critical Reader in Canadian Mad Studies. Toronto: Canadian Scholars’ Press.
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Price, M. (2011). Mad at School: Rhetorics of Mental Disability and Academic Life. Ann Arbor: University of Michigan Press.
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Pickens, T.A. (2019). Black Madness :: Mad Blackness. Durham: Duke University Press.
Colonialism and the Global South
Section titled “Colonialism and the Global South”-
Meekosha, H. (2011). “Decolonising disability: thinking and acting globally.” Disability & Society, 26(6), 667-682.
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Imada, A.L. (2017). “A decolonial disability studies?” Disability Studies Quarterly, 37(3).
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Puar, J.K. (2017). The Right to Maim: Debility, Capacity, Disability. Durham: Duke University Press. (Introduces “debility”; influential but contested — its analysis of Israel/Palestine has drawn substantial criticism, which readers should weigh.)
Cure, Care, Access, and Crip Technoscience
Section titled “Cure, Care, Access, and Crip Technoscience”-
Clare, E. (2017). Brilliant Imperfection: Grappling with Cure. Durham: Duke University Press.
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Taylor, S. (2017). Beasts of Burden: Animal and Disability Liberation. New York: The New Press.
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Hamraie, A. (2017). Building Access: Universal Design and the Politics of Disability. Minneapolis: University of Minnesota Press.
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Hamraie, A., & Fritsch, K. (2019). “Crip technoscience manifesto.” Catalyst: Feminism, Theory, Technoscience, 5(1).
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Nishida, A. (2022). Just Care: Messy Entanglements of Disability, Dependency, and Desire. Philadelphia: Temple University Press.
Epistemic Injustice (borrowed-lens pairings)
Section titled “Epistemic Injustice (borrowed-lens pairings)”-
Fricker, M. (2007). Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press. (A philosophy text, not disability-specific — pair with disability and Mad-studies work on being disbelieved by doctors, courts, and welfare offices.)
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Samuels, E. (2017). “Six ways of looking at crip time.” Disability Studies Quarterly, 37(3).
Disability Statistics and Data
Section titled “Disability Statistics and Data”International Standards
Section titled “International Standards”-
Washington Group on Disability Statistics.
- Website: https://www.washingtongroup-disability.com
- Question Sets: https://www.washingtongroup-disability.com/question-sets/
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World Health Organization. “Collection of Data on Disability.”
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United Nations Statistics Division. “Disability Statistics.”
Data Sources
Section titled “Data Sources”-
Annual Disability Statistics Compendium. Institute on Disability, University of New Hampshire.
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U.S. Census Bureau. American Community Survey Disability Statistics.
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U.S. Bureau of Labor Statistics. Persons with a Disability: Labor Force Characteristics.
Guides and Toolkits
Section titled “Guides and Toolkits”-
CBM Global. Disability Data Advocacy Toolkit.
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American Foundation for the Blind. Resource Guide to Disability Statistics.
Research Methods and Ethics
Section titled “Research Methods and Ethics”Inclusive Research
Section titled “Inclusive Research”-
National Disability Authority (Ireland). Ethical Guidance for Research with People with Disabilities.
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IASSIDD. Ethics Guidelines for International, Multi-Centre Research Involving People with Intellectual Disabilities.
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Disability Innovation Institute, UNSW. Doing Research Inclusively: Guidelines for Co-Producing Research with People with Disability.
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Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). “Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies.” American Journal of Public Health, 106(12), 2137-2144.
Research Ethics
Section titled “Research Ethics”-
U.S. Department of Health and Human Services. The Belmont Report.
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Nind, M. (2014). What is Inclusive Research? London: Bloomsbury.
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Walmsley, J., & Johnson, K. (2003). Inclusive Research with People with Learning Disabilities: Past, Present and Futures. London: Jessica Kingsley Publishers.
Accessibility Standards
Section titled “Accessibility Standards”Web Accessibility
Section titled “Web Accessibility”-
W3C Web Accessibility Initiative (WAI).
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Web Content Accessibility Guidelines (WCAG) 2.1.
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Section 508 Standards.
Universal Design
Section titled “Universal Design”-
Center for Universal Design, North Carolina State University. The Principles of Universal Design.
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CAST. Universal Design for Learning Guidelines.
Organizing and Advocacy
Section titled “Organizing and Advocacy”Guides and Resources
Section titled “Guides and Resources”-
Independent Living Institute. Tools for Power: A Resource Kit for Independent Living.
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National Council on Independent Living. Advocacy and Lobbying in Centers for Independent Living.
Accessible Protest
Section titled “Accessible Protest”-
Disability Rights Education and Defense Fund. Protesting While Disabled Pocket Guide.
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Commons Library. Making Protest Accessible: Tips and Checklists for Actions.
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Liberty (UK). How to Organise a More Accessible Protest.
Employment
Section titled “Employment”Government Resources
Section titled “Government Resources”-
U.S. Equal Employment Opportunity Commission. ADA Resources.
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Job Accommodation Network (JAN).
Organizations
Section titled “Organizations”-
Disability:IN.
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APSE (Association of People Supporting Employment First).
Education
Section titled “Education”Government Resources
Section titled “Government Resources”-
U.S. Department of Education. Office of Special Education Programs.
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U.S. Department of Education. Office for Civil Rights.
Organizations
Section titled “Organizations”-
AHEAD (Association on Higher Education and Disability).
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National Center for Learning Disabilities.
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Understood.
Benefits and Economic Security
Section titled “Benefits and Economic Security”Government Programs (U.S.)
Section titled “Government Programs (U.S.)”-
Social Security Administration. Disability Benefits.
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Centers for Medicare & Medicaid Services.
Resources
Section titled “Resources”-
ABLE National Resource Center.
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Benefits.gov.
Housing
Section titled “Housing”Government Resources (U.S.)
Section titled “Government Resources (U.S.)”- U.S. Department of Housing and Urban Development. Fair Housing and Equal Opportunity.
Reports
Section titled “Reports”- Technical Assistance Collaborative. Priced Out (annual reports).
Healthcare
Section titled “Healthcare”Organizations
Section titled “Organizations”-
American Association on Health and Disability.
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National Alliance on Mental Illness (NAMI).
Crisis Resources
Section titled “Crisis Resources”Hotlines and Support
Section titled “Hotlines and Support”-
988 Suicide and Crisis Lifeline (U.S.).
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Crisis Text Line.
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Disability Rights Organizations (by state).
Media and Culture
Section titled “Media and Culture”Disability Media
Section titled “Disability Media”-
Disability Visibility Project (Alice Wong).
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Wong, A. (Ed.). (2020). Disability Visibility: First-Person Stories from the Twenty-First Century. New York: Vintage Books.
Representation Resources
Section titled “Representation Resources”- RespectAbility. Entertainment and Media.
Academic Programs
Section titled “Academic Programs”Disability Studies Programs
Section titled “Disability Studies Programs”-
Society for Disability Studies.
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Syracuse University Disability Studies.
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University of Illinois Chicago. Department of Disability and Human Development.
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CUNY School of Professional Studies. Disability Studies Programs.
Journals
Section titled “Journals”- Disability Studies Quarterly. https://dsq-sds.org
- Disability & Society. Taylor & Francis.
- Journal of Disability Policy Studies. SAGE.
- Review of Disability Studies. University of Hawaii.
Additional Resources
Section titled “Additional Resources”Directories and Databases
Section titled “Directories and Databases”-
ILRU Directory of Centers for Independent Living.
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Disability Rights Digital Library.
Plain Language and Accessibility
Section titled “Plain Language and Accessibility”-
Plain Language Action and Information Network.
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WebAIM.
How to Cite This Bibliography
Section titled “How to Cite This Bibliography”When citing materials from this bibliography, use the citation format appropriate for your context (APA, MLA, Chicago, etc.). For DisabilityWiki internal use, include the source URL and access date.
Contributing to This Bibliography
Section titled “Contributing to This Bibliography”To suggest additions to this bibliography:
- Ensure sources are credible, accessible, and relevant to disability rights and inclusion
- Prioritize sources by and for disabled people
- Include complete citation information
- Note if the source is open-access or requires subscription/purchase
See How to Contribute for submission guidelines.
This bibliography centers disabled people’s expertise and prioritizes sources from disability-led organizations.
Contribute to This Page
Section titled “Contribute to This Page”Have lived experience or expertise that could strengthen this page? We especially welcome perspectives on models not well represented here, including those from the Global South and Indigenous communities.
This page centers disabled people’s expertise and is informed by disabled-led organizing globally. For questions or to suggest additions, see How to Contribute.